Newborn Twins with Rare Disease Denied Life-Saving Treatment by Insurance Company
Twin brothers Eli and Easton Reed were recently diagnosed with spinal muscular atrophy (SMA), a rare genetic disorder that affects the motor neurons in the brain and spinal cord. SMA is a progressive disease that can be fatal, especially in infants. Without treatment, children with SMA rarely live beyond two years of age.
The Reed family had been hopeful when they learned about a medication called Zolgensma, which could potentially save the lives of their newborn sons. However, their hopes were shattered when their insurance company refused to cover the cost of the treatment, leaving the family in a devastating situation.
In a desperate attempt to raise funds for their sons’ medical expenses, the Reed family turned to the popular crowdfunding platform GoFundMe. Thanks to the generosity of friends, family, and strangers, over $359,704 has been raised so far. However, the cost of the treatment is still out of reach for the family, as the insurance coverage has been terminated.
The family is now at a loss on how to proceed, as the cost of the medication is exorbitant and unaffordable without insurance coverage. They are relying on the support of the community and state officials to help them secure the necessary funds for their sons’ treatment.
The fundraiser for Eli and Easton’s medical expenses has been temporarily paused, but may resume in the future to ensure the twins receive the life-saving medication they desperately need. The family is grateful for the outpouring of support and efforts made by the community and state officials to help them during this difficult time.
The Reed family is hopeful that with continued support and advocacy, they will be able to provide their sons with the treatment they need to fight SMA and live healthy lives.
